A new year and a new decade, with a renewed commitment to this blog on a more regular basis. However, I want to show that my life is not all surgeries and pain pills. My life is a complex, exhilarating, beautiful, (sometimes exhausting) adventure!
Yes, there are hardships as we manage my health struggles and trials of life, but there is also abundant joy, excitement, and laughter. I have two energetic little boys who are my pride and joy, and a husband I am hopelessly smitten with. We have wonderful parents and extended family (though not without our drama) and incredible friendships with people of all ages and stages of life. Our leadership in Radiant City Church is a privilege and a humbling position that we commit a lot of energy to, and in all things we desire to love and know Jesus and others more every day.
Although my body has limitations that force me to say no to some wonderful things, it does not keep me from living my life. As much as I'm able, I get to parent and raise my boys, handling the every day tasks of motherhood. I go to birthday parties, play dates and swimming lessons. I have movie nights and spa days with my girl friends, enjoy company for dinner and board games, go on adventures with family and splurge on fancy dinner dates with my hubby.
Together we nurture our marriage and parenting, commit to know and love our neighbours, co-lead a discipleship group, and prioritize Jesus by practicing His presence in the every day. We also love to dream and make goals we hope to fulfill one day. (We are currently praying about homeschooling, I hope to one day reach out to other women/mothers going through health trials, and Adrian is planning on returning to school for his Masters of Divinity). Sometimes we get worn down and have days where no-one gets dressed, where we watch endless Disney movies and survive on take-out. However, we also have dance parties, cuddle puddles, zoo trips, couch cushion forts, and wonderful times with friends and family. Yes, there are limits, sometimes extreme ones, and yes there are many things I wish I could do, but our lives and our hearts are full with purpose.
Throughout most of my blog you will read stories of pain, struggle, frustration and sickness. You will see how we try to cling to Jesus and God's Truth in all of it, though it does not come easily. My desire is that you will also see the hope and faith within it all.
Today I am in bed after just being discharged from the hospital. I spent the last six days with left sided paralysis, a terrible inflammation flare and received somewhat discouraging test results that will need looking into. Today my body is not well, but my heart is filled with joy! I came home to my two baby boys (not really babies anymore) that were bursting out the door to see me. I got to kiss and be held by my husband, and I was given all the equipment and resources I need to keep improving at home. Right now I could focus on the pain and discomfort and what the future may bring, but instead I'm going to think about my hilarious tickle fight with Gabriel, the snuggles with both my boys, visits from dear friends/loved ones, and the feeling of fresh clean sheets on my own bed (heavenly!)
Our journey ahead is unclear and the path not always easy, but my heart right now is full.
Author - Erin
Follower of Jesus, on a journey to glorify God and to advance His Kingdom while battling Chronic Illness in the everyday life. Diagnoses include Lupus, CVID, POTS, IBS, Hemiplegic Migraines and other Autoimmune conditions.